Job Opening Details:
BioNews, Inc. a digital news company dedicated to creating communities for patients with rare diseases and their caregivers, is looking for members of the paroxysmal nocturnal hemoglobinuria community to join our freelance staff of patient and caregiver columnists on our upcoming website Paroxysmal Nocturnal Hemoglobinuria News .
A BioNews columnist is a patient or caregiver who shares about life with rare disease. Through personal essay or column format, they write to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.
All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.
Please note you MUST be a member of the PNH Community -- patient or caregiver -- in order to apply for this position.
Responsibilities and Duties
Who is BioNews www.bionews.com
BioNews is a leading online health, science, publication, and research company that exists for one purpose: to serve the patient living with a rare disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare diseases.
To empower, inspire, and champion the patient voice as the preeminent resource that serves to engage, inform, and connect the global rare disease community.
We connect rare disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life.