Ultragenyx Pharmaceutical Inc.
Patient Enrollment Liaison
Why Join Us?
Be a hero for our rare disease patients
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team. During the COVID-19 pandemic, we are committed to the health and safety of our employees and prospective employees, which means at this time our interview processes may include virtual discussions, interviews, and onboarding. Please note that compliance with local regulations and safety protocols is a condition of employment at Ultragenyx. Elements of safety protocols may include, but are not limited to: work from home requirements, regular or symptom-based covid testing, providing valid evidence of vaccination, mask wearing, and physical distancing.
US based roles: Full vaccination against COVID-19 is a condition of employment at Ultragenyx. This requirement applies to almost all roles at Ultragenyx based in the U.S., with very limited exceptions. If you are unable to receive a COVID-19 vaccine due to a disability, serious medical condition, or because it would violate your sincerely held religious belief, you will have an opportunity to request a reasonable accommodation.
Roles based outside the US: If the role requires travel to the US or another country that requires evidence of covid vaccination for entry, candidates and employees will be required follow the local regulations and corporate policy regarding vaccination evidence submission.
Position Summary:
The pipeline Patient Enrollment Liaison (PEL) is a member of the Patient Diagnosis Programs team responsible for identifying patients with rare diseases and the HCPs who care for them for the purpose of enrolling Ultragenyx’s pipeline programs. PEL responsibilities include engaging with potentially eligible patients and/or the HCPs who manage them to provide disease state education, provide information on Ultragenyx clinical trials and how to enroll in them, manage the queue of potentially eligible patients across pipeline programs, and work closely with Clinical Operations to triage and track potentially eligible patients until they can be handed off to clinical trial sites for screening and potentially enrollment. This position requires a tenacious and empathetic professional with established personal and scientific credibility to interact remotely with both patients and the clinicians who treat them.
Work Model:
Remote: officially documented as working full time from home, with travel to Ultragenyx's offices or other location on occasion as needed.
Responsibilities:
- HCP engagement:
- Fields queries from HCPs treating potentially eligible patients
- Provides preliminary information on clinical trial(s) to HCPs managing potentially eligible patients and facilitates introduction of HCPs to Clinical Operations
- Patient queue management:
- Liaison between Global field medical teams and Clinical Operations to assist with patient find strategy and coordinate communication
- Works closely with Global field medical teams and Clinical Operations to track and triage overall queue of potentially eligible patients inbound from field contacts and non-personal recruitment channels
- Patient engagement:
- Fields clinical trial queries from interested patients and/or their caregivers who have contacted Ultragenyx via phone, email, patient find website, and other channels
- Provides preliminary information to potentially eligible patients and/or their caregivers on clinical trial(s) and other research opportunities
- Facilitates introduction of potentially eligible patients directly to study sites or their managing HCP to Clinical Operations for further discussion of clinical trial involvement depending on patient preference
- Support the Field Medical teams with their patient find activities, including creating materials, providing expertise and guidance, and supporting training
- Provide insights observed in interactions with patients and HCPs as necessary
- Collaborate with internal cross-functional teams
- Comply with all UGNX policies and procedures
Requirements:
- 5+ years of industry experience
- Bachelor’s/Master’s Degree in Health Care/Life Sciences/Nursing or equivalent preferred
- Relevant experience in the rare disease space encompassing patient diagnosis
- Demonstrated, in-depth experience working with patients
- Excellent understanding of the pharmaceutical clinical development process
- Excellent communication skills required
- Values-based collaborator – respectful, accountable, and collaborative
- Results driven and accountable to work product
- Ability to organize and prioritize own work schedule
- Ability to relate and work with a wide range of people and achieve results
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Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
· Generous vacation time and public holidays observed by the company
· Volunteer days
· Long term incentive and Employee stock purchase plans or equivalent offerings
· Employee wellbeing benefits
· Fitness reimbursement
· Tuition sponsoring
· Professional development plans
* Benefits vary by region and country
Ultragenyx Pharmaceutical is an equal opportunity employer & prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status. Reasonable accommodation will be provided for qualified individuals with disabilities and for qualified disabled veterans in job application procedures, as required by applicable law. If you have any difficulty using our online application system and need an accommodation due to a disability, you may contact Talent Acquisition by calling: (415) 483-8800 or by emailing us at talentacquisition@ultragenyx.com. For electronic email and mail inquiries, please include a description of your requested accommodation, your name and contact information.
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Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.